A change in location

For those following this blog concerning bowel resection I have started a separate blog on that very subject. I have written about five articles about my second bout with colo-rectal cancer. I have been trying to move my health discussion off this blog because the title was meant for me to do a little ranting and raving on that most may not find very interesting, This blog receives approximately 500 to 1000 hits a month remains the number one search item on Google if you type in bowel resection home recovery. I feel honored and privileged to have created a blog that derives so much interest and I thank all of you for your caring and your sharing. For those who are interested in other colon health articles please see the attached link:

http://www.blogger.com/blogger.g?blogID=3654292179841215038#overview/src=dashboard

Side effects limit range of activities.

I had not thought about it until my daughter stated in one of her posts on her own blog, The Jenny Life, that colon cancer is not only a deadly disease but its victims encounter embarrassing and humiliating side effects. How true. The surgery is over, the chemo is done but my system is reestablishing normal. 


A week after I stopped maintenance chemo for good I left Arkansas  to travel to Michigan for my 50th high school class reunion and to visit family. It was fun, but it was clouded by my system. I could not seem to get it under control. Under control for me means I may go to the bathroom every few hours or so. I also may have a measure of control, which means I do not have an accident and shit my pants in public. Usually it is a small accident, but there have been times it is bad.


I visited my nephew in Racine and it was great to see he and his wife after all these years. We picked up as though we had never been apart. However, I had to stay close to a bathroom as I was experiencing some slight incontinence so I wear a pad to keep from anything leaking through which is not only embarrassing but could stain someone's furniture.


On to Munising and my class picnic. It was held at a classmate's beautiful summer home on Lake Superior. It was wonderful to see all of my old classmates. We are all in our late 60's now and no one put on any airs. That is over. We just hope to survive another ten years. I was pretty much at ease, no problem, lots of fun with my daughter and we had a good time.


Monday evening the class banquet. I was not at ease, I had no one to sit with and other classmates I was interested in sitting with seem to have grouped up and there was no room. However I sat with some old friends and had an enjoyable dinner. However, at the end of the dinner as the band began to play I had an accident. I was not sure, but I cannot afford to wait. I eased out and went back to my sister's. Sure enough I did have an accident so I missed the social part of the night. I don't dance so it was not big deal, but I would've like to move around and seen some people.


Wednesday was the parade, July 4. We had a float and other vehicles in the parade. I could not control my system. I was not having accidents, but if I did not make a bathroom in a brief amount of time I would have an accident. So I stayed at my sisters.


It was that way the whole trip and when I got home I was not happy. It was a tiring trip, I ended up driving from the U.P. to the Minneapolis area to see a sister who was under the weather then drove all the way to Arkansas in one sitting. It was a bit much. 


Now that I have been home for some weeks my system is getting more even. I have still had some accidents. One day Terry and I must've come down with a bug. I was out of control for much of the day and it wasn't nice. I had several messes to clean up but at least I was home. God knows what I would've done if I was out in public.


So life is OK. I don't hurt anymore when I go to the bathroom but my system is not normal and I guess I will learn to live with the unexpected. It does limit my range of activities and I do have to be more aware of what I eat and the situations I get into. That said, I am a survivor and now I know how thankful I am for every day.

The "last" for a long time

Saturday, June 9, 2012 I started my last week of maintenance chemo. It has not been bad. I take nine pills of a drug call Xeloda. It converts in my body to a drug called "5FU." It is the drug used in conjunction with radiation a year ago. The effect of the drug is not as profound as it was a year ago, I think mostly the inflammation from the radiation compounded by whatever side effects the drug contributed were what made that phase of the treatment so rough. However, these drugs are not without some side effect. I get a funny sensation around my lips. I do not develop mouth sores nor am I having any breakouts on my extremities. But I do develop an odd taste in mouth. I also get fatigued about day four. Not too much during the day, but when I come home at night I am bushed. I have found myself going to bed as early as 7 PM.


This is the last week. I am ready for some long period without treatment to see how my body settles out. Right now, it does pretty good. I have had some episodes where my body says "Purge thyself." That can get pretty rough. I lose control of my bowels and have to stay near the bathroom. I have yet to try any Limodal or Immodium to stem the tide because I kind of feel that nature is getting rid of stuff for a reason. 


Other than that, I feel good. My energy level is not real good, but them I'm 67. I am up by at least 5 AM every morning and don't hit the bed until after 7 PM at night. I work a fairly long day, albeit it is pretty sedentary. Still I work, I come home and I really appreciate life. I hope this is the beginning of a long run of good health. It has been a long year.

Going Back in Time

I do a lot of thinking during my daily one hour walk. Today I got to thinking, suppose you were given a chance to go back in time. You would still have to live through the same times moving forward, but you would know what you know today. How many years, or what age would you go back to?

I thought about ten years. I'd be 53, not 63, and I would not have had the cancer experience. However, I was not running the training group I now manage, I was still very much over weight, I was a Type II diabetic, had high blood pressure, high cholesterol, and did not have much get up and go. So no, I would not go back ten years.

How about 20 years, to 1988. Well, I'd have been in Arkansas one year, I would be going through the stress of relocation, a new job and my divorce. I would do some things differently, but it was not a good time in my life. So no, I wouldn't go back 20 years.

Today I have a job I love. My wife and I are financially secure. Our property is well developed and will be paid off soon. We have some money in the bank, an investment portfolio, and I have survived cancer. I've lost 50 pounds, my blood pressure is normal, my diabetes is gone, and my cholesterol is normal. I only take two prescription medications, and my get up and go is back.

So how far back would I go. Well, I'd go back to age 18, 45 years ago. I'd have a lot of choices to make. I'd probably go into the Army first instead of after college. I'm not sure I'd go to college, I'd probably learn a trade. I would know about drinking, cigarettes, and how my marriage would turn out. Would I marry the same gal? Hmmm, there really isn't a good reason not to. She is a good woman, and had I known what I know now, maybe our life choices would've turned out better.

So I guess the answer is, Naw, the choices I made have turned out the best. Life is good, just shorter now. I'll enjoy the years I have left with the decisions I made, no regrets.

Brookfield Poo Pond & Kenny Kiar

Never heard of Kenny Kiar? I have. The year is 1965, I get a summer job at the City of Brookfield, WI Sanitary Department, otherwise affectionately known as the Poo Pond. I was hired for general labor and the first thing I had to do was scrap and paint a very long metal railing that went around the place. I was out doors, no one pushed me and I just worked along. However, if you know me I was bored stiff and angling for other things that appeared to be more interesting, like driving around Brookfield servicing substations.

Kenny Kiar was a maintenance man, and older fellow, in his 40's perhaps. He worked at the Brookfield Sewage Plant several years before I arrived. He was gone most of the time on repair assignments to the various pumping stations or substations and we did not work together much at first. However, when I was done with the railing painting and the mowing he and I did start traveling about the city on repair missions. I would glaze broken windows he would check on and perform preventive maintenance on the equipment. We became friends.

After a time every morning meant a stop a the Brookfield Cafe for a sweet roll and a cup of coffee. Here Kenny indulged me with stories of his Navy days and lamented that he never had the opportunity to go to college. As a result he would never let me buy the sweet roll and coffee for either of us. He would say, "Your going to college, you need to save your money, don't become like me a man who'll have to physically work the rest of his life."

Every time I have a sweet roll and a cup of coffee I think of Kenny. I hope his life turned out well and he got to sit in an easy chair and watch his garden grow.

Love and In Love

I have been told, in the south, that it is OK to love someone, but it may not be OK to be in love with someone. I have a very dear friend, a male and we tell each other we love each other. A childhood friend, also a male, when we see each other we tell each other we love the other. I love my wife. What does "in" have to do with it? To be "in" love almost sounds like an act of love, then what is just loving another person. I do not know the distinction.

A psychologist I know well described love as an act of choices. I choose to be with this person. I choose to honor that person by being faithful and caring of their emotional well being. I spend time with that person because I derive pleasure from being with them. I care for that person with my material resources because I want them to be provided for. We share intimate thoughts because we trust one another.

Then mix in sex and the equation really goes ballistic. Yet I am not sure sex is an expression of love rather of a physical need that gets fulfilled by two emotionally attached person. After all we read of people who are promiscuous, or we read of swap clubs, or a lot of couples have affairs and dalliances that would seem to be impossible if a person truly loved the other.

There seems to be two aspects to relationships, rational and emotional. The two mix, but sometimes not well. A steady parent loses his head in an emotional relationship with an exciting, enticing woman and all of a sudden a marriage blows up and people are hurt because emotion overrode rational judgement.  On the other hand can a person love a person intensely and yet the rational side defeats the emotional side.? So what is love? I guess love by itself is just that, strong, warm feelings toward another person, mix emotion and you have an increase in intensity, but I'm not sure that love is any greater, just enhanced by hormones.

Then again, what the hell do I know.

Are We Teaching Hate?

My daughter Jenny has a blog, the Jenny Life. It is good. She is creating a phenomenal history for her children as most of the articles include pictures and a description of activities the family has participated in. I cannot imagine the value to those kids in 20 or 25 years. From time to time she posts an article that gets me thinking, probably far more or deeper than I should. A recent article is titled the exact title of this blog, Are We Teaching Hate? The gist of Jenny's blog is she was concerned that a book that her daughter brought home about MLK might awaken in her mind the fact that Blacks look different than White, Latinos or Asians. There were pictures from the civil rights era showing dogs attacking civil rights marchers, water cannons being turned on protesters and other pictures showing the tenor of the times. I believe Jenny believes that her children don't see Black, Brown, or Yellow. I do not know if and/or when children notice we are different one from another. I never had the opportunity. I grew up in a small town in northern Michigan, we had no TV, at least not until I was twelve years old. News of the world was simply not known to me. So I was naive.

As I moved on I learned. I spent the better part of Friday evenings at college talking with a black librarian named Mr. Scott who took the time to talk about the similarities in our families, black and white not the differences. He told me of the social culture of blacks and that in many ways it was learned just as white people learn their social culture.

I took part in college wide discussions and programs on civil rights and the right of equality. Nigger was a word I thought of from time to time, but it did not come out of my mouth. It is kind of like we learn all those words we associate with prejudice, stereotypes and hate, Kike, Mick, Wop, Dago, Spic, Chink, Zipperhead, Slant eyed, Jap, and on. Dustin Hoffman in a 1974 film titled :Lenny" played Lenny Bruce, the idol of none other than Richard Pryor. In one scene Lenny is playing in a smoke filled club and starts saying, "Are there any Kikes in here, any Niggers, how about some Wops or Mick. Any Spic's." He zeroes in on a black man and his date sitting at a table, and he says again, "How about some Niggers, you a Nigger there?" The Black man is infuriated, humiliated and about ready to pounce when all of a sudden Lenny says, "I wish we would use these words and make them part of our everyday vocabulary so they become acceptable. Perhaps then a black child might not run home from school crying because she was called one of those terrible names."

Point made, point taken.

We all have prejudices. We all have stereotypes. They are taught us by being around our parents, our community, our teachers, and those we grow up with. Do we teach hate, We can.. We can teach it in our homes, we can teach it in our schools, we can teach it in our churches, and we display it in our actions. I think prejudices, stereotypes and differences between people need to be discussed and talked about. I think we need to emphasize that we are truly equal, I can use any other human blood in my body for a transfusion. Race plays no part in that. We can fall in love with people from different races. We owe it to ourselves to understand our prejudices and stereotypes so that when we come up against one we can make a choice. For if we make a decision about a person based on race, color, creed, religion, etc., without thought we fall victim to our prejudices and stereotypes and deny ourselves the opportunity to have a wonderful human experience.

Values are learned close to home and at a young age. Our values change over the years as we grow and mature, but our beginnings are right in front of us.