Showing posts with label home recovery. Show all posts
Showing posts with label home recovery. Show all posts

Friday, October 23, 2009

Recent Thoughts

I am now corresponding with three persons who have had or a loved one has had a bowel resection. The earliest article on this blog concerns my trek through recovery at home. I could not find any information on home recovery after that type of surgery. I did have a support group consisting of my children and two sisters. I talked to my two sisters daily. It helped that they listened and provided information on their experiences and cheered me on. One daughter is a nurse and helped provide research and information. What I was really after was what I was experiencing a common occurrence during recovery or was it a problem. I decided to write a log of my home recovery experience.

I am delighted that it apparently is helping some people. The article is rather blunt and is not the kind of thing one might think of as polite conversation. Bowel resection isn't polite though. I just added a counter to this blog to see how many hits I actually get because I'm sure not everyone who reads the article comments. The article remains at the top of the page on the Google page if you enter Bowel Resection Home Recovery. That means it must be of interest to some. That is a very satisfying feeling. I finally did something that is making a difference for some people in trouble. I am happy.

Saturday, January 10, 2009

Two Year Anniversay

Yesterday, January 9, 2009 marks two years since I had bowel resection surgery. I had written a long piece concerning my experience in home recovery after bowel resection and I Googled that topic this morning, the essay was in the number one position on the first page of the Google sort. According to my daughters that means for that topic it receives the most "hits." I have no idea as I do not have a counter, nor do I receive replies. However, over the two years I have had about four people send me emails appreciating my communication. The essay is quite graphic and direct, but reflects information I wanted to know during recovery.

How is life now, two years after?

It is OK. I went through a period of losing weight, on purpose mind you. I walked an hour a day, watched what I ate and had the outcome of having a physician pronounce my Diabetic II diagnosis resolved. I reduced my blood pressure medications to one. I reduced my cholesterol medication to one. I did go through a scary episode of irregular heartbeats but learned to live with them and have gotten off all medication that I was on for a mis-diagnosis of atrial fibrillation. So one might say the benefits of the surgery to remove a cancerous polyp went far beyond being cancer free.

I am disappointed in myself at the current time. I have put back on 30 pounds of the 60 pounds I took off. I walk several times a week instead of daily. I wouldn't mind the reduced exercise if I could keep the weight off. I worry about getting myself back into type II Diabetes and having to get back on medication. Yet I find myself almost mindlessly stuffing my face with sweets.

Health-wise I seem to be doing well. My last check up indicated my cholesterol level was below 200, and the other cholesterol readings were all within the desired ranges. I will see my surgeon in about two weeks but don't expect anything other than you are doing well to be the outcome of that check up. The annual colonoscopy check on year after surgery was clear and the next check up will be this coming November. If this check up is OK then I will not need to be checked for five years. I did go through a small bowel obstruction episode in June 2008. That scared the hell out of me. Their appeared to be no reason for the obstruction, but it was a mentally defeating experience.

So how do I really feel. The surgical scars are fading. My bowels are beginning to act in what I feel are a normal fashion. I am somewhat surprised at the length of time and the feeling that healing is still going on. I have had bowel issues since surgery, not anything painful or scary, but issues with having to go numerous times along with not being able to have the sense of voiding completely so you felt like you had to go a few minutes after you went. More of an aggravation that an actual concern. I did have my gall bladder out nine months after bowel surgery. That has added to the digestive tract discomfort, although that seems to be getting better too.

For the most part I feel well. I have some muscle aches that are a little unnerving. They tend to be located along my rib cage on the right side in my back muscles. They don't hurt all of the time, but on occasion when I work outside they will cause me pain that might carry on for a day or two. I don't know whether to associate that with a side effect from surgery or just old age. Probably old age. The weight loss has allowed me to be more flexible and I am much more active in repairing things around the house much to the delight of my wife.

The psychological scars are also dimming, but I do find myself spending too much time thinking about things. The surgery, and the fact that a cancerous polyp was removed awakened the realization that I am going to die some day when I thought I had dealt with that issue and was comfortable with the idea. However, a dear friend of mine, a high school classmate I still stay in touch with expressed to me that thought is on his mind about his mortality. So perhaps it is a stage of life rather than some psychological impact of surgery. I am 64 years old and I am starting to see land on the horizon of this sea of life I've been crossing.

Most days are good. I do not walk around with a sick feeling like I did before surgery. I enjoy where I live and have been able to resurrect my interest in doing house repairs and projects. I have a great appreciation for keeping in contact with my two daughters, I find their lives to be of great interest to me and their welfare precious. Life is good, my wife and I still have jobs in this time of economic recession. Our home is almost paid for, and I've negotiated a good refinancing contract with the local bank on our investment property. I do not want for material items and can afford most of those items that fall into the category of "toys."

So there is life after surgery. I do not know that my internal worry meter is any greater today than it was several years ago. The passage of time seems to move at a quicker pace than my younger years, but that is OK too. I am thankful for the skill of the surgeon and the support of my family through this recovery period. I do not consider myself completely recovered because I still encounter or notice improvements or a settling down of my body's functions and actions. If anyone has followed my writing on this topic because they are going through the same things I wish them Godspeed and I hope their outcome is as successful as mine appears to be.

Tuesday, October 7, 2008

Health Update

In two days it will have been 21 months since I had bowel resection surgery. A rough time line goes something like this: Jan, 2007 Bowel resection surgery, February 2007 irregular heartbeat becomes noticeable, March 2007 hospitalized for an Afib episode, August 2007 irregular heartbeat becomes so noticeable that a Holter monitor is prescribed for a 24 hour period, at the same time I start to encounter gall stone attacks, November 2007 gall bladder surgery, June 2008 small bowel obstruction. Whew!

I have had almost 5 months of peace. My irregular heartbeat still exists, however the sensation has almost slipped below consciousness. The gas attack episodes I was having due to the gall bladder removal have become very mild and almost not noticeable. I still am not used to the bowel activity and variation I run into, however I am sensing a pattern and am relieved at that.

From a psychological stand point I believe I am now getting some stability. When I had bowel resection surgery and realized my brush with cancer I have had to deal with mortality issues all over again. I am older now, time is passing rapidly and I don't want it to. My work years are dwindling down, I still haven't made up my mind when I shall retire however retirement does not seem like vacation to me. It seems more like a recognition of the end.

The small bowel obstruction scared the hell out of me. At the time it was very painful and I was as sick as I ever have been. I thought perhaps ulcer, some sort of rupture, then when I learned obstruction I thought a recurrence of cancer. It all worked out very well, but the Dr. told me that I might have another occurrence in a week, thirty days, a year, thirty years or never again. The not knowing was hard on me. Every time I had a gas pain, did not have a BM for a day or so, or just felt a little bloated I worried about an obstruction. I am now worrying less, but it was such a painful, unpleasant experience that I do not want it to come back, ever.

One of the things that seems to be important in my digestive tract activity is drinking water. Soda, coffee and other liquids all contain water, but my system seems to want a pretty good dose of water.

I am more at peace now. I am able to plan for the future better than a year ago. I have bought some "boy toys" like a tractor with a front end loader, I bought a new air rifle to do some squirrel hunting, Terry and I have some plans for landscaping. My mind is reaching out further and the end of time is moving out away from me again. However, 30 years ago time was like a grand ocean to me, I could not see across it. Now, I can see the distant shore and the outline of trees, but I still cannot see an individual tree, but the far shore is now visible. Perhaps being closer to an end will make life that much sweeter to me. We shall see.

Right now, I feel fine, I exercise. I am having difficulty keeping me weight down and have to work at that. Work is interesting, however working around the house is becoming more pleasurable. Maybe I am in mental transition from work to retirement.

Friday, June 13, 2008

Another Milestone

June 9, a Monday marked 18 months since I underwent bowel resection surgery. In fact, surgery took place on a Monday, and the 18th month anniversary was a Monday. It seems like I should take stock of where I am at and obviously give thanks because of the success of the surgery.

Couple with the surgery I went on a prolonged diet and have lost over 50 pounds. My pants size has dropped 6 inches and my stamina today is better than it has been for probably 20 years. I walk for one hour a day, six days a week. God and I rest on Sunday. I am watching what I eat, but that is tough. I do enjoy food.

I have not been back to a doctor now for some six months. The follow up colonoscopy in November was normal and I do not have to have another for two years. I still have some bowel issues, however they are not causing a great deal of discomfort. I go quite often, my definition of regularity is I go regularly, but not necessarily the same time of day every day.

Each day I take stock of how my body feels. Two years ago my days tended to be a shade of Grey with some bright days that happened on occasion. I characterize my days as bright when I feel good physically and mentally, dark when I feel bad and Grey when I don't feel good but not really bad. I recall that there were times that I would be out in the yard working and I just did not feel good. I worried about my health, I knew I was terribly overweight and was taking all kinds of medication for blood pressure, diabetes, and high cholesterol. I could not see very far down life's path. Today is different. Today most of my days are bright, the shades of Grey are light, and I can't think of a black day for some time.

When is assess my body I no longer have a sick feeling. When I have some digestive tract problems I don't feel sick, usually just uncomfortable. My attitude about doing things has improved. My wife comments frequently how pleased she is that I am doing things around the house instead of sitting and letting the world pass by. I do not have the energy level I had 30 years ago, but I ain't bad. Most days I am up before 5 AM and in bed by 9 PM. That is a seventeen hour day, I rarely nap, and feel quite good. Evenings are somewhat lethargic, I guess I'm just tired from the day's out and abouting. Many people come home from work and then set about working around the house until the wee hours of the night, but I've never done that. I guess for too many years I had my nose stuck in a bottle.

I still grapple with psychological issues. Having cancer and surgery reawakened the issue of my mortality. God I love life, I don't want it to end. I enjoy talking with my daughters and following their life story. I am able to walk a picturesque little path around my ten acres, and not many people can do that. I give thanks for that. I see clouds, and scenery, and creatures and am amazed by the constantly shifting patterns life allows us to observe, if we take the time. On my morning walks I run into numerous box turtles plying the path with me in search of something to eat. We've had a change in the types of birds that frequent our yard, it isn't huge but having lived here for so long it is noticeable. I like that. I do not attribute those type of changes to global warming or any other man made phenomena, it appears to be shifting patterns as mother nature makes sure her species don't kill out an area.

I especially enjoy the morning coffee and talks my wife and I have. For years we sit in bed, drink coffee and discuss a variety of topics. Sometimes there is nothing to discuss and we have the first cup in silence. Sometimes she lays there and reads and I just think of the days events and things that have to be done. Other times we make up our shopping list and think about what is going on in the week.

Life is good and I am having a tough time dealing with the fact that the years in front of me are dwindling. All of a sudden my daughters have a generation younger then they are. That is pushing us all up the ladder. I suppose if I had accomplished more in my life, if I had invested money and felt better about my financial security perhaps I would accept aging better, but I suspect not.

It may sound like I dwell on my growing old. I really don't. I think about it while walking sometimes and then push it out of my head. Life really is good! From all indications the surgery was successful. I am off almost all medication. My blood pressure is under control, my cholesterol is low, I no longer take medications for diabetes. I really have a lot to be thankful for. I remember to be grateful every day, and I must say my brush with serious illness has tempered my behavior and attitude. When I feel my temperature rise because something is making me angry I am able to stop and say, wait a minute, what is really important here? I deal with things better than I did before.

So, eighteen months after surgery life is very good. I pray that it continues for many years in the pattern established now.

Friday, January 11, 2008

A year later

Well it has been just over a year since I had a bowel resection. Today, I feel very well. In November of 2006 my Family Dr. wanted me to start taking insulin to counteract the high glucose levels I seemed to be sustaining. I asked him to wait three months and let me try to diet and see what I could do. Little did I suspect!!!

Later in November 2006 a colonoscopy revealed a "suspicious mass" in my lower colon that required surgery, it had gotten too big to be removed during the colonoscopy. So on January 9, 2007 I underwent the bowel resection procedure.

Recovery was tough, I was ill prepared for what I would go through and did not have a lot of information on what to expect. I talked to my surgeon's nurse quite often and she helped me understand what was taking place. I have documented a lot of what I went through earlier on this blog for those who wish to look back. Thank God for my sister who had uterine cancer and could shed some light on what I was experiencing, also my step daughter who is a surgical nurse and helped me understand the procedure. A great big thanks to my oldest daughter for her support and help. She even came to Arkansas and stayed a week to help me and determined I was dehydrated which helped me over come a real physical problem of having an upset stomach much of the day. Thanks to my oder sister who is a retired RN and could lend support from her knowledge base. Finally, thank God for my wife who stayed with me in the hospital, who cared for me at home, who kept talking to me and reassuring me that all would be OK. Recovery was tough, it would've been a lot tougher if it hadn't been for my support group.

Today, I no longer take any diabetic medication. I exercise by walking vigorously one hour a day, I have lost 60 pounds. My blood pressure has dropped back to normal, I am off cholesterol medication with the exception of Zocor. All of my cholesterol readings from several blood tests are well within the normal range. I am in the best health and best physical condition I've been in for over 20 years.

I went through a lot. I had the bowel resection in January, in March I had an atrial fibrillation attack that hospitalized me until my heart converted to sinus rhythm two days later. My previous diagnosis of premature ventricular contractions escalated into a real irregular heartbeat problem that darn near drove me nuts. I ended up wearing a holter monitor and taking a drug, rythmole, for what was perceived as a heart arrhythmia. In Oct, after much exercise and walking I got off the diabetes meds, dropped one cholesterol med, and because my heart pulse got so slow, like low 40's, the rythmole dose was reduced. In November my gall bladder was removed and I had to deal with some diet issues. All in all it has been a tough year, yet at the same time it has been a most uplifting year. I've lost a lot of weight, I am cancer free, my blood pressure is normal, my cholesterol levels are low, my stamina and flexibility are excellent, and I'm looking forward to a long and healthy life. As of January 2008 I am off rythmole and while I still experience an irregular heartbeat, it is lessening and is not much of a problem now.

You can change your outlook and you do have options.

Wednesday, December 12, 2007

Medical Follow Up

Today I had a colonoscopy. It was part of a one year follow-up on my bowel resection. The results were normal, no polyps. In some ways it seems so long ago, in other ways it seems like yesterday. I feel well, I've lost weight, I exercise regularly and find work meaningful. Yet, I feel defective, my body became ill and has betrayed me. I am having a difficult time feeling any great optimism about anything. I find my mind wandering to my own mortality issue. What I need to do is just get on with enjoying my life. My wife and I are financially OK, our health is pretty good, and we are secure.

Friday, December 7, 2007

Eleven Months of Recovery

If anyone has read my blogs you know I had a bowel resection on January 9, 2007. I never could find out any information about what took place during recovery when you are out of the hospital and home. So I wrote a series of blogs about my experience hoping to provide some information out on the web that might be useful to some other persons going through the same type of recovery period.

From time to time I've updated my progress and that is what this is. In 3 days it will be 11 months since surgery. In that intervening time I also had my gall bladder removed about a month ago.

I am happy to report that I think I am doing well. From a physical stand point I have lost a lot of weight, on purpose. I regularly exercise, I mean daily, a 50 minute strongly paced walk, and I try to watch what I eat. I log my vital signs every day as a means of staying in touch with how I feel. I use a lot of personal positive feedback by assess how I feel physically during my exercise period. I work very hard to keep the negative thought patterns at bay.

December 12 I go in for a follow up colonoscopy. Given the pathology results after surgery and my assessment of my well-being I expect the results of the colonoscopy to be clear. So, from a physical stand point recovery is good and the prospects for continued health very promising.

I do have some remnants of a psychological impact. I do have an irregular heartbeat. I had PVC's (Premature Ventricular Contractions) prior to surgery, but they have elevated in frequency of occurrence since surgery. I belong to a forum that discusses irregular heart beats and am relieved to find my self in a lot of company. The medical world has proven to me that my irregular heart beats are benign and will not cause me any health problems.

I believe that stress plays a big role in the onset and continuance of the heart beat problem. I have been thoroughly checked out and do not have any underlying heart disease or damage. Yet these irregular heart beats occur daily, and may last for some time. The frequency seems to be dying down, but still I get aggravated when they occur.

One thing that apparently occurs after major surgery is a fear of the disease reoccurring. This I've read is common. I am 62 years of age, I thought I had come to terms with my own mortality some years ago. Undergoing surgery, even though very successful, has reawakened that realization that I have fewer years in front of me than I have behind me. I do not find myself depressed, but I seem to have become aware how fragile our existence is. In some ways it has led me to a greater appreciation of my wife, my children, and surroundings. Yet I am plagued with the idea that I may not get to enjoy those these things for a long time. The thoughts do not dominate my existence, for the most part they intrude when I am alone, musing about life in general. I drive the thoughts away by refusing to let them occupy much mental space and time.

Everything has gotten better, including my mental attitude, so I expect these dark musing will lift even more. It probably is a progressive process of recovery of spirit just like the physical recovery is a progressive process.

My system seems to be settling into some form of regularity after the surgical intrusion. I now am facing some problems from the gall bladder surgery, a hand full of mixed nuts seem to make my stomach slightly upset and can trigger a series of bowel movements that can be rather uncomfortable and frequent. Other than that, I'm doing very well.

In a nut shell, life is OK. Some thoughts about dark things, but frankly probably not much more than the normal person encounters going through life. I certainly have an appreciation for persons undergoing medical procedures I never had before, and I am grateful for the quality of care I've received. This experience has certainly strengthened the bond between my wife and I and my recovery experience would have not been as positive if it hadn't been for her.

That is all for this day. Keep the faith fellow survivors, life is good!

Monday, November 12, 2007

Will I Ever Learn?

The gall bladder surgery went very well. I have some soreness and discomfort in the rib area and my shoulder hurts, but it is really minor compared to bowel resection recovery. Until today that is. Apparently the surgery and the Tylenol I was taking ganged up on me and made me constipated. This morning, about 2 AM I woke up with severe abdominal cramps. Laying there in the dark one's imaginings start to get out of control so I was feeling like perhaps I had some blockage and would have to undergo more surgery. The pain ebbed and flowed all night, and while I did get some rest it was little and interrupted by cramps.

This morning I called the Dr.'s nurse and she assured me that constipation following surgery frequently occurs. The nurse said she'd been there and done that. She recommended I get some Ducolax suppositories or some Milk of Magnesia. I guess I didn't hear "or." I called my wife, she left work early and picked up the suppositories and milk of magnesia. I was desperate, it hurt. So I took one in the rear and downed a shot of mom. Yessir, will I ever learn?

My hemorrhoid feels like a balloon, my butt hurts when I sit down. I've used a whole roll of toilet paper by myself and was treated to sitting on the john some 30 times or so. I don't have any constipation and the cramps are gone, but damn my ass is sore. Other than that I feel like a million bucks!

Monday, October 29, 2007

41 Weeks After Surgery

It is hard to believe that almost ten months has gone by since bowel resection surgery. I think I have done well. I have dropped 60 pounds since surgery and have gone from 44-46 waist slacks to 38-40 waist pants. I am walking 45-60 minutes per day, I have gotten off most of the medications I was taking prior to surgery and am feeling very well. The other day I noticed that the general feeling of malaise (generally not feeling well) has pretty much left. I felt well much of the time prior to surgery and the weight loss but there would be days where I generally did not feel good. We might call them days where you feel "off." No specific complaints and I did not feel sick, just didn't feel well. I've noticed that overall feeling seems to be gone. There are days I get frustrated or aggravated with my irregular heart beat but I seem to be learning to live with that. There are days I feel a pain or ache someplace but I can always determine the source and it goes away quite soon.

I am going to have my gall bladder out in a couple of weeks. I found out from a CT Scan before surgery that I had gall stones but the bowel resection took precedence and the surgeon wanted to wait six months to a year before he removed the gall bladder. Well, it is now ten months and time for those symptoms to go away.

I still have some psychological issues. The cancer surgery apparently was more stressful than I thought. I ended up with an increase in my irregular heart beat and have been hospitalized for an A-Fib attack and spent some time seeing cardiologists in determining that I do not have a heart problem. Everyone has an irregular heartbeat, I am just more aware of mine right now. I am working on ignoring the event when it occurs and that does seem to be effective.

I still can have some pain when I have a bowel movement however it is because I may push too hard. The pain when I urinate is pretty much gone, and I have determined that that pain was caused by muscle strain from pushing too hard having a BM. I do encounter periods of gas when I eat, not always but I have no predictor for the event. Not only that I have a hard time controlling the expulsion of said gas and that has caused me some embarrassment. Thank God no one has fallen on the floor laughing, however I usually end up snickering.

I give thanks that the cancer was caught so early. I do have to go in for a follow-up colonoscopy an about a month, but I believe that will simply confirm the prognosis of the physicians who have evaluated my case. As I believe I said before, the Oncologist made a statement like, "your cured." I know nothing is 100% in medicine, but the growth was caught very early. Thanks to the Family Physician that agitated me for a couple of years to have the test done. It is a shame I waited as long as I did.

Anyway, I am still recovering. My BM's are not regular but my control has improved dramatically. I am much more comfortable in my daily life, and with the weight loss and exercise I have gotten back enthusiasm for working around the house, much to the delight of my wife.

For those of you that may read this, I pray your outcome, if you have bowel resection surgery is a successful as mine has been. I recall those early days of recovery and it is tough. But I've noticed continual improvement as I have gone along and I am sure you will to. God Bless All.

Posted by yoopertom at 5:23 AM


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Thursday, October 11, 2007

Ten Months Update

How time passes. It is now ten months since bowel resection surgery and things are well. I now notice that having a bowel movement is becoming more of a routine instead of an adventure. I no longer suffer from leakage. The episodes of having to go right now or I would have an accident seem to have stopped. Those adventures made travel or shopping an interesting event. Often I would have to quickly abandon my wife in the aisle and head to the nearest rest room hoping that trying to keep from having an accident did not influence my ability to walk too much. I was afraid I would look like an idiot scurrying to a bathroom with the cheeks of his ass held tightly together.

I still have the feeling when I urinate that I can't control the back end too well and I get a feeling as though some bowel may come out, however it hasn't caused a problem. I pretty much accept the fact that I have to wash my bottom with a wash rag on occasion. That ain't all bad.

I am feeling very well. I do have episodes of gas after I eat that I do not recall prior to surgery. In addition there are times that I cannot pass gas quietly and have some funny but embarrassing moments in public. Nothing too disastrous like blowing out the windows in a store, or scattering the clothing in the men's area.

I still have the sense that there will be further improvement. The hemorrhoid I raised early in recovery seems to have taken up permanent residence. It used to disappear for long periods of time prior to surgery, now it is pretty much there all of the time. However, it is small, it is not painful, and other than a little noticeable when I shower or clean myself it is not a problem.

Life is settling into a routine where I feel good almost all of the time. My stamina is good, I do not feel tired in the afternoon to the point I'd like to nap. I lift, work, do all of the things I did before and I rest pretty well. Other than periodic episodes of an irregular heart beat I feel great. Yes, there is health after recovery, just be patient.

Saturday, September 29, 2007

Here is a success story

Approximately ten months ago I had a bowel resection. The "suspicious mass" was malignant, however it was caught so early that my prognosis is excellent. The oncologist used the word, "you're cured." Periodic colonoscopies should prevent further occurrence. That is not to say that some other form of cancer might rear its ugly head, but I fall into the same risk category as others who have not had colon cancer. That is good news.

Recovery at home was tough. However I have a number of essays in this blog covering issues that I encountered during home recovery that may be valuable information to others going through a bowel resection.

In addition to the surgery I am/was being medicated for hypertension (high blood pressure) high cholesterol, type II diabetes and atrial fibrillation. In addition I encounter an irregular heart beat. Some of that information is also documented in this blog.

Now after 10 months, numerous trips to various physicians I am able to report substantial progress. While I was undergoing home recovery my weight dropped significantly because of lack of appetite. The surgery was in January, in March I decided to continue the weight loss in the form of a calorie counting diet. I had lost approximately 26 pounds in the two month period since surgery. In addition in March I had an atrial fibrillation episode that hospitalized me for two days while that settled out.

Now some ten months after surgery I am able to tell anyone interest that I have lost a total of 60 pounds and dropped 4 - 6 inches off my waist line and am in the process of retooling my wardrobe. Everything from my hats to my shoes are looser. I am walking 40 to 60 minutes a day at a 3.5 mph clip. I have completely eliminated the Metformin and Glipizide I was taking for type II diabetes. I have eliminated one of the two hypertension medications and upon advice of a cardiologist retained one medication, fosinoprol sodium (Amapro) because it has been shown to reduce the risk of heart attack. My resting blood pressure averages 107/75 now.

I have dropped one of my two cholesterol medications called Tricor. Tricor targets triglycerides and my last blood test indicated my triglyceride level at 41 and normal range is 40 - 200. With that much upward room my physician agreed with me that eliminating Tricor is an acceptable risk.

My daily walking pattern had started to whip my heart into shape. As you may know as your heart becomes stronger your pulse rate slows down. The capacity of your heart to pump blood increases so the frequency it beats can slow. My pulse rate has slowed to the low 40's which my physician and I felt was too slow. To control the atrial fibrillation problem I was taking Lanoxicaps (digoxin) and a new drug called propafenone (Rythmole). The cardiologist told me to stop taking Lanoxicaps immediately after my physician called him to discuss the slow heart rate I was encountering. The cardiologist made an appointment for me to see another cardiologist that specialized in the electrical performance of the heart. When I saw this new physician and he learned that I had only had two A-Fib episodes in the past 18 - 20 years he basically said you do not have an atrial fibrillation problem. Two episodes in that period of time do not constitute a heart arrhythmia but are considered lone episodes whose cause is unknown. I know what the cause was, those were two times in my life I was undergoing extreme personal stress. Regardless this new cardiologist agreed that dropping the digoxin was OK as he felt it had no therapeutic effect at this time. (Digoxin slows the heart rate.) This doctor also felt that the propafenone was not necessary. In fact, propafenone can contribute to heart palpitations or irregular heart beat. We are now weaning me off the drug, in three months I well wear a Holter Monitor for 24 hours and if there are no episodes of A-Fib then the propafenone (Rythmole) will be dropped. I believe that will be the outcome.

When all is complete I will be a cancer survivor. I will have lost over 60 pounds. I will have in place a regular exercise program to strengthen and maintain my heart. I will have eliminated the type II diabetes medication. I will halve the cholesterol and hypertension medication and eliminated the antiarrythmia medication. I will be left with an irregular heart beat that most people encounter, they just can't feel it. My heart palpitations have reduced already, the sensation has become almost imperceptible, and I feel the best I've felt in 20 years.

Only time will tell if I am able to maintain this routine. I intend to! I document all of my progress in the form of a spread sheet filled with blood pressure, pulse and glucose information. It is my method of obtaining positive reinforcement. I can say that I've come a long way, I feel good, and hopefully the follow-up colonoscopy in November will document the success of the surgery.

I have learned that it is necessary for you to take an active part in your health maintenance. Doctor's do not know all of your past history. The usual blood tests and various test for specific symptoms do not tell the full story. I have spent a lot of hours studying on the problems I was encountering and have learned a great deal. This has assisted me in asking intelligent questions and add specific information as it relates to "me." This has allowed the physicians I pay to assist me in my health maintenance to make more informed decisions. I am another of those who have learned through painful experience that you have to take charge of your own health, all doctors can do is advise on what they know. So good luck and take charge!

Sunday, August 26, 2007

Week 34 Recovery

Things are going well. The Citrucel recommended by my surgeon some time ago seems to be helping my body regulate its bowel activity. In addition I've learned not to try too hard and have seemed to overcome the pain and feeling like I still had to go right after I'd gone. I am pleased with the progress.

My heart PVCs have calmed down some. I have still some episodes, they come in the morning, pretty calm during the day, then again at night. However the duration seems to becoming less and less and mentally I've made strides in accepting the aggravation as simply that.

The gas attacks I was having seem to have decreased volume and frequency. However, I still have poor control and end up making some noise as I move around my daily routine. Some funny, sometimes it embarrassing. All in all I think I've turned the corner and look forward to more normalcy in my life.

Sunday, August 12, 2007

30 Weeks After Surgery

My Dr.s recommendation to take Citrucel daily seems to be paying off. I am not regular, however, the evening seems to be the time for a BM. I still go often, sometimes 5+ times a day. I call it a "little a lot." I have not been experiencing the incomplete feeling much, I have relaxed and instead of trying to push if I feel I have to go more I just relax and let my body handle it. If nothing else comes, I get up and go on about my business. I may be back on the commode in half an hour, but I don't have the extreme discomfort of "hang fires."

I still get pain in the rectal area when I go, and then if I have to urinate soon after a BM it will be painful. Other times it is not. I don't attach any great importance to the pain, I just figure it my body is trying to make sense of things. I have not had an accident in some time now, so I figure that is significant. I have also found out that if I'm traveling or in a meeting I can postpone a BM without an accident. There was a time that when my body said it was time to go you had better get seated quickly. Now it seems to accept a delay.

I still get gas, not regularly and I'm not sure what triggers it, but sometimes I get gas like I feel I might be a balloon whose inlet has been release and flies crazily around the room. Most of the time there is no odor, but if there is odor present I will probably have a BM fairly soon. So I'm learning my body's new paradigm.

If a Dr. said this is as good as you're going to get, I could live with this. I still think it will get better. I recall the lady I met who had a bowel resection and had more serious issues than I and after five years she said she doesn't feel like she had surgery. I hope for that day.

I have another issue, heart arrhythmia that is causing some discomfort. I go to the Cardiologist tomorrow to have a Holter Monitor put on. Nothing serious, but my PVC's are grouping. They were random, but now I seem to get a grouping in the early morning, mid-afternoon, and when I go to bed. That also tends to be the time I take a drug called Rythmol to prevent A-Fib. I don't have enough good data to support a link, but the timing seems to be close. I guess we'll learn about that in the next few days.

As far as the bowel resection, I feel good. My anxiety level is down, however I do find myself quite nostalgic. I wish I were closer to my home area in Michigan, I wish I saw my kids more often. My two sisters are growing older, I don't want them to. I guess before surgery I did not see a horizon in my future, now I do. I can make out the tree line in the distance as the end of my days move in and I do not like it. My wife has become very important to me, our time together precious. It might sound like I'm dwelling on a bleak future, I am not. I have always thought time goes too fast. There is so much to enjoy in this world, I guess I am lamenting the passage of time. I do try to get out of each day as much as I can. I am blessed.

Sunday, August 5, 2007

29 Weeks and some changes are evident

Progress is slow. I think I have pretty much healed physically from the effects of surgery. Mentally I am making progress, I do not have the anxious moments as often. I did run into a couple of days last week but the anxiety I encountered early on in recovery has lessened quite a bit.

I also discovered I am regaining my "confidence." I have pointed out before that losing one's confidence is when you go to pass gas but don't because you aren't sure what is going to happen. I haven't had discharge accidents for some time now. I had spoiled some underwear and had a couple of minor accidents at work, but some time has passed and those episodes seem to have ended.

I do encounter gas problems after eating. Not all of the time but often enough to be agitating. I also encounter the feeling that I have to go, but don't. I am taking Citrucel daily as the surgeon recommended. I'm not sure I have any regularity but most bowel movements seem to occur in the evening now. I still go a little a lot. I spent much of last night going from bed to bathroom all hours of the night. However it was OK. I went right back to sleep and did not have to strain to go.

I have been walking forty minutes a day for the past few days and it does not bother me. So I guess my stamina is increasing. All in all I feel pretty good, I just wish my system control would improve and I didn't go so often.

Sunday, July 29, 2007

Time Pases

It is now more that 28 weeks since surgery. From a health standpoint I feel fine. I believe my body is still adjusting to the new situation and psychologically I am still a little fragile. Last week I had a good week, all week. I felt well, I had my episodes having bowel movements and that is aggravating, but I really felt good. Until Saturday. Saturday my wife and I had one of our daughters and her new "main man" over for dinner. I had felt uneasy all day, I was going a lot and had that discomfort associated with many BM's. However, it still was a good day. I had forgotten to take Citrucel Friday night so I took a dose Saturday morning.

After dinner and everyone had left with the exception of one granddaughter who was spending the night I took the regular dose of Citrucel. However, I had started feeling bloated about an hour before. I did eat a lot of tomatoes, pickles and drank a lot of coffee. Plus, I had not taken my usual three or four bottles of water during the day. After the granddaughter and my wife went over to the trailer I spent a little time playing solitaire on the computer and mentally letting the day come down. I started feeling worse, pain in my stomach area. Not down low in the bowel region but up higher just above my belly button. I thought it was gas so I took some baking soda in water and belched a few times. The pain got worse, it was really uncomfortable, but I thought once I lie down it'll be OK. Well it wasn't. To make a long story short I was up until 3:30 AM with stomach cramps. It was not the abdominal muscles that were cramping but the stomach. I started to think I hurt myself, a ulcer had eaten a hole in my stomach and caused a blood line to break, I don't know but when I am all alone at night my mind can get pretty dark.

At 3:30 AM I came downstairs, got on WEB MD and checked out the symptoms. Well hell, I had symptoms of about 20 ailments. I figured if the symptoms are so generalized then it probably isn't serious. I got a bottle of water, sipped it and played some more solitaire as I contemplated waking my wife up and suggesting she take me to the emergency room cause I was in trouble. Well, as I sipped the water the symptoms cleared up. I felt discomfort from the area for a while, but the symptoms left and I went to bed. Unfortunately Sunday has been lethargic. I feel like I've been drug through a knot hole, but the cramping is gone. Apparently I didn't drink enough water, maybe the extra load of Citrucel, and the acid in the food all conspired to give me a rough time. What ever the reason today I feel OK, just tired.

One of the problems I encounter when anything like that happens is I get melancholy. I realize how much my wife means to me, I know we are getting older and in the next ten years or so will enter the golden years of our lives. I guess because of her diabetes we both assume she will go first, yet I am older, by six years. I can't bear the thought of having to go through life without her. My wife is not what you would call a sentimental nurturing person, but she is fiercely loyal. She believes she can overcome and works hard around the house taking care of things. Everything is just better with her! Oh well, enough already. It was a good week capped by a troublesome few days. Next week has the opportunity of being better.

Friday, July 27, 2007

Strange Thoughts

I have a strange sense of humor, my friends tell me that, my children tell me that, my wife tells me that. I find humor in minor events and major events. Oh, not everything is humorous, I don't make light of cruel or tragic events or situations. Where if find my humor though is in strange places, I wonder about things a lot.

Now that I am fairly well along on the road to recovery from bowel resection my mind turns to the little niggly things that plague me still. For example, having a bowel movement is not the ho hum event it was seven months ago. My system is still rebelling at the incursion the surgeon made into my lower abdomen. As a result I end up sitting on the commode feeling like I have to go and not going. Sometimes if I strain mightily I will have some results but the surgeon has warned about herniating or rupturing the resection seam so I have to try an stop from doing that. Often if I strain the results are not very complete, I still have the feeling there is more to come, or I haven't finished the movement yet. I feel like an unsuccessful composer developing a symphony, I haven't finished all the movements yet. That is where I have come up with the idea of a bowel movement has turned into a symphony for me, it is made up of many movements.

I have discovered other things. The NST (No Seeum Turd) Apparently the stool is now so aerodynamically shaped that it shoots through the water goes down the trap and out of site so fast that if I life my behind to see if my contribution to the commode nary a ripple remains on the water. It was like I never went, yet I know I did, but where then are the results. NST's!

Often I have to sit on the stool a long time, waiting. This is not good for idle minds that are full of mischief as is my mind. Soon I start to contemplate, is the stool tapered on the front end or the back end? There is that old childhood joke of do you know why a turd is tapered? No, why? To keep your asshole from slamming shut. So I wonder, what kind of noise would that be? If the stool is crowding to get out, in other words, packing itself into position for its exit then it seems to me that the nose end would be blunt and the back end tapered as it hopefully eases away from the rectal area. So, if the stool has a jagged or broken off appearance does that mean that I had an incomplete movement and some remaining stool enjoys plaguing me with that unfinished feeling?

I recall years ago there was a fascination in the U.S. with "floaters" and "sinkers." I have heard some very humorous presentations on that topic. Supposedly if you have a "floater" you have a balanced diet and the digestive tract is working well. If you pass a "sinker" you have too much protein or something that causes it to sink. Hell, I have both, sometimes in the same symphony. However, I have noticed since recovery has been under way that the percentage of floaters to sinkers is improving. I guess that is a good sign.

Apparently there is a tensile strength issue too. Once and a while I have a stool that seems endless. I feel relief and would like to see such a prodigious effort. That is when I am frustrated by the NST syndrome, see above, and it is gone, Or, perhaps a tail lurks in the trap giving me a hint of length but not knowing is frustrating. Other times I have it break in the middle and obviously there is a compaction issue that reduces the tensile strength so that it cannot support it descent. This is OK. The ones that are frustrating are when they break and the rest will not come out. That is when you are left with the feeling of having to go, but cannot. I call this the "hang fire" problem. A "hang fire" in an artillery piece is when the primer does not fire and you are left wondering is there is some smoldering explosion waiting to blow up in your face should you open the breech. Well, its kind of the same thing, you feel incomplete, it hurts or aches, and you are left cleaning yourself, pulling up your britches and walking away with that feeling in your butt. Sometimes the feeling goes away and everything is OK for a while, other times you just get set to continue whatever other activity you were involved in when the rest of the stool says OK, NOW!

Well, that is what is on my mind this week. Humor is everywhere, you just have to look for it.

Tuesday, July 24, 2007

Six Months

It is now a little more than six months since surgery. Time passed quickly, although from day to day you were not aware of that passage. I have no pain from the surgery, and I haven't had for some time. However, my system is still adjusting to the new situation. I seem to go a little a lot in the case of a bowel movement. I still run into that feeling of having gone and not completed the transaction which leaves one with an urge to sit on the commode and go some more. I have learned to trust my body to some degree and ignore that urge and go one about my business, the old body will tell me if I really have to go some more.

I had a Dr.'s visit last week to finalize the six month check up. He was satisfied with everything, I described my on going saga of BM's and nothing I said alarmed him. The Doctor did make the suggestion that I take a glass of Citrucel once a day. I have started that new regime and it does seem to have had some impact already. I have a little more ease in going and the stool comes without the strain I was encountering.

I do feel a lot better. I have dropped about 50 pounds and my blood pressure is in the normal range, my glucose level seems to be under control so there are some real benefits because of the surgery. It is a shame that it takes such a catastrophic event to get us to change our ways. This is the best I've felt in probably 10 to 15 years.

I still get some pain in the lower muscles when I urinate or have a BM. I also find myself sitting on the commode when I simply have to pee, but that is because I have been surprised a couple of times and had to change my underwear. I find it safer to sit. I do not know if that will change, but I do know that if where I am at does not get any better I can live with the current situation.

When I eat I do seem to get gas right away and find myself in the position of having to raise my butt of the chair to release the gas. That makes it seem obvious and I don't like that. Plus, I do not have good control of when gas may be expelled so it can be a little embarrassing. It does remind me not to eat too much and try to keep the Southern wind down a little.

My stamina is not back where I would like it, and I do get tired at the end of the day. I have not been napping very often, occasionally I do, but for the most part I don't seem to require a nap in the afternoon. When I am working around the house I have to remind myself to slow down, stop and take a break on the porch and drink a bottle of water. I consider those things good however, and don't find the breaks objectionable. I also find myself debating whether the fatigue I feel in the evening is part of recovery or part of old age, I am 62. My mind says so what, my body seems to say "give it a rest."

If anyone is reading this blog, there is life after surgery. I do not expect a occurrence of the cancer. The Doctor and I talked about a follow-up colonoscopy in November of this year. At this point all signs point to good golden years. I pray for good results for every person who undergoes bowel resection surgery for whatever reason. I hope my thoughts have helped someone.

Tuesday, July 17, 2007

Get in contact

There were several persons who sent me an email in the last month asking for some more information or just comments. If anyone who had previously asked a question would care to resend their email I would appreciate it. I am unaccustomed to using MS Outlook as my mail tool, I've used Outlook Express for several years. In the process of reducing my email files I inadvertently delete some comments concerning this blog. I would be more than happy to share what information I can provide. I just don't know where to provide it.

Thanks

Yoopertom

Monday, February 26, 2007

Some medical episodes during home recovery

Most changes, or episodes seemed to happen to me in the first four weeks of recovery at home. The first week I would lay down in bed and try to go to sleep and as I dosed off I would be wakened by a light coughing fit and then gag. It was like my sinuses were draining and causing me to gag. It did not last long, and it did not occur every night, but it was a little disconcerting.

I was fortunate, I had stopped smoking years ago and as a result do not have a chronic cough. I did run into some coughing spells that made me hold my tummy because it pulled and there was light pain. I think if I had a chronic cough, for the first four weeks I would keep a pillow nearby to use as a brace against your stomach when you cough. I have no idea if you could injure yourself, but it just feels better if you have support on you abdomen when you cough.

One of the things to watch for is constipation. At first your diet is usually so bland and soft that having a bowel movement is no big deal. However, as you gain more confidence in your appetite and more foods start to appeal to you you may notice as I have that I feel like I have to go, but cannot. While the stool looked well formed, it also looks hard. It is. Constipation and straining too hard to have a bowel movement can cause several things. First, you muscles in you lower abdomen become sore. Second, you could potentially cause a hernia to occur in the lower intestine, I have to be very careful because my incision is quite low in my body. Creating a hernia in the incision area could mean more surgery. High fiber is important, and if you can supplement high fiber in your food with over the counter medicine. I did not pay too much attention early on in my recovery and hope like heck I did no damage, but I am paying attention now and it does seem to be paying off.

Good luck and swift recovery.

Sunday, February 25, 2007

Some Additional Episodes during Home Recovery

It has almost been seven weeks since surgery. I'd like to report that I am ready to take on all things in life, but that is simply not true. The pain in my abdomen has subsided, but I am still sore and get little jabbing reminders that something was done to me. The one irritating thing that seems to be somewhat relentless is my upset stomach. I am prone to gas after eating, not that I wasn't before the surgery but this is quite uncomfortable. I am taking chewable Gavascon tablets chased with a glass of water and that seems to be helping. Still I cannot seem to shake this nervous feeling in my stomach.

My bowels are not regular. I think they are trying, but I am running into constipation. I have the feeling of needing to go, but can't. I have strained myself, but the Doctor said don't. You could create a hernia in the incision in the lower bowel causing a problem. I am now taking a fiber supplement and a stool softener. The Surgeon made a real point of DO NOT take a laxative. It has been a couple of days taking the two supplements and it does seem to be working to some degree. However, I have no idea if and when I will return to comfortable regularity I once knew.

I am still weak and tire easily. As I have stated in the larger post I am not a sleeper, so when I nap it may be for 20 to 40 minutes. It does refresh though and I am grateful for anything.

I am taking an anti-biotic for a urinary tract or bladder infection. I experience some discomfort and once and a while a slight burning sensation when I go. The anti-biotic is having some effect, but not completely relieving the symptoms. However, the anti-biotic does have some effect on the body. It says you may become dizzy, light-headed, upset stomach, loss of appetite while your body adjusts to the medicine. I've been having an upset stomach for some time. I do not know if it is tied to the medication, the surgery, both or other things going on. I have to take the medication for 14 days, day 14 is tomorrow, hurray! I hope that my stomach problems diminish, it is getting me down.

Among the side effects is irregular heartbeat. I would imagine that most people without heartbeat problems would not experience this side effect. However, I have a history of arrhythmia and premature ventricular contractions. So I can't help but feel the increase in PVC episodes is due to the medication. I'll find out in a few days.

I think that recovery from major surgery is a healing process coupled with dealing with different episodes as you recover. I know I am a lot better than I was four weeks ago. I am no longer nauseous, I am getting out and about. I don't feel very good, but in the end I'm getting there.